Aubrie Starr, the smallest girl with the soother in the photo below, has Pulmonary Hypertension, a very serious and often fatal disease with no cure.
Aubrie's mom lost her job and her home and they resorted to living in their car for a few days until some crowdfunding allowed them to take a room.
We have been following little Aubrie's harrowing struggle through life for a couple of years now and this girl and this family really needs a break.
Please pray for them and if you can help financially, that would be great too.
You can contribute at: https://www.youcaring.com/my-children-604835/update/507689
The Story - Kenya Blum - Aubrie Starr's Mom
I lost my job after my youngest child's last fight with pneumonia. I have not been able to locate a new job. My children and I slept in our car for a few nights and we have tried shelters in our area but they are all currently full or have a waiting list. Salvation Army allowed us time in a hotel but funding has run out. My youngest is 3 years old and suffers from lung disease called Pulmonary Hypertension and requires oxygen at night while she is sleeping. For her to sleep in the car is not safe and with this heat it puts her at risk. We are asking for help staying in one place until a spot opens for us in the mother/children' shelter where we can receive the resources we need to become independent again.
Posted on July 21, 2016 by Kenya Blum
On my family’s behalf and mine I would like to express our heartfelt thanks. We continue to be humbled by your gift during these hard times. By your generosity we will be able to rebuild and become independent again. With your help we are able to have shelter until we are accepted into the mother and children's shelter where I will receive the resources I need to finish college, get back to work and become financially stable once again. I have always said it would never happen to me or my children but it did. It can happen to any of you. Hug your babies tight and Thank God for what you have it could all disappear. Be grateful and consider everything you have as a blessing. You have all blessed us beyond belief in these past few days. We thank you so much!
Posted on July 24, 2016 by Kenya Blum
We will not be able to get into the Mother and Children's program until mid August. Please continue to pray for us and help share our story. We still need to get nearly 2 weeks covered so we are not sleeping in the car until then. Right now it looks like we will have a place through Saturday morning. Thank You again for all the help we have received this far. I have continued to apply for positions and follow up on leads. Please continue to pray for us and this journey ahead.
Posted on July 26, 2016 by Kenya Blum
Through your donations another week has been paid, we are still in need of almost 2 weeks until Mother and Children House opens their doors again.
We would again like Thank You for helping us stay some where with A/C and not in our hot car. It really makes it easier on Aubrie and her breathing, her oxygen use at night and being able to take cool breaks during the day.
Yesterday at 09:15 ·
Update from Little Aubrie's Mom, one of the hardest working people I know...
½ Our room is cover until August 5th. We are 10 days short on funding. Each night is $39plus tax If you are able to cover at least 1 night it would mean more than you know. Also please continue to keep us in your prayers as I am trying to find a qualified child care center for Aubrie and still looking for a new job. Please pray that when the Mother and Children's house opens mid August that we are accepted as there is no guarantee. We want to thank everyone who has helped us during this time.
More history on Aubrey Starr:
Aubrie's mom lost her job and her home and they resorted to living in their car for a few days until some crowdfunding allowed them to take a room.
We have been following little Aubrie's harrowing struggle through life for a couple of years now and this girl and this family really needs a break.
Please pray for them and if you can help financially, that would be great too.
You can contribute at: https://www.youcaring.com/my-children-604835/update/507689
The Story - Kenya Blum - Aubrie Starr's Mom
I lost my job after my youngest child's last fight with pneumonia. I have not been able to locate a new job. My children and I slept in our car for a few nights and we have tried shelters in our area but they are all currently full or have a waiting list. Salvation Army allowed us time in a hotel but funding has run out. My youngest is 3 years old and suffers from lung disease called Pulmonary Hypertension and requires oxygen at night while she is sleeping. For her to sleep in the car is not safe and with this heat it puts her at risk. We are asking for help staying in one place until a spot opens for us in the mother/children' shelter where we can receive the resources we need to become independent again.
Posted on July 21, 2016 by Kenya Blum
On my family’s behalf and mine I would like to express our heartfelt thanks. We continue to be humbled by your gift during these hard times. By your generosity we will be able to rebuild and become independent again. With your help we are able to have shelter until we are accepted into the mother and children's shelter where I will receive the resources I need to finish college, get back to work and become financially stable once again. I have always said it would never happen to me or my children but it did. It can happen to any of you. Hug your babies tight and Thank God for what you have it could all disappear. Be grateful and consider everything you have as a blessing. You have all blessed us beyond belief in these past few days. We thank you so much!
Posted on July 24, 2016 by Kenya Blum
We will not be able to get into the Mother and Children's program until mid August. Please continue to pray for us and help share our story. We still need to get nearly 2 weeks covered so we are not sleeping in the car until then. Right now it looks like we will have a place through Saturday morning. Thank You again for all the help we have received this far. I have continued to apply for positions and follow up on leads. Please continue to pray for us and this journey ahead.
Posted on July 26, 2016 by Kenya Blum
Through your donations another week has been paid, we are still in need of almost 2 weeks until Mother and Children House opens their doors again.
We would again like Thank You for helping us stay some where with A/C and not in our hot car. It really makes it easier on Aubrie and her breathing, her oxygen use at night and being able to take cool breaks during the day.
Yesterday at 09:15 ·
Update from Little Aubrie's Mom, one of the hardest working people I know...
½ Our room is cover until August 5th. We are 10 days short on funding. Each night is $39plus tax If you are able to cover at least 1 night it would mean more than you know. Also please continue to keep us in your prayers as I am trying to find a qualified child care center for Aubrie and still looking for a new job. Please pray that when the Mother and Children's house opens mid August that we are accepted as there is no guarantee. We want to thank everyone who has helped us during this time.
More history on Aubrey Starr:
Little Aubrie Starr's Condition Worsens as Doctors Undecided as to What to Do
Hope PHor Aubrie Starr
17 July 2014
Have to leave here in the morning at 6:30am to take Aubrie to the specialty children's hospital to see her cardiologist and PH team. She had some episodes of passing out over the weekend, a couple nights of low stats and has been exhausted more than normal. Hopefully we can finally find out if anything has changed with her Pulmonary Hypertension. I will keep everyone posted!!
Hope PHor Aubrie Starr
18 July
Aubries drs feel that with her condition being so difficult to truly know what is going on all the time it is in our best interest to get a second opinion from a lung transplant specialty team. They will begin sharing notes and information with a team in Chapel Hill. It may be that she is fine where she is right now or it could mean she needs a central IV line or a sub q line. It may be that a transplant is best. Nothing has been decided they are just seeking a more experienced decision. It does appear her condition may progressing. As I am made aware of thing with her care I will let all of know as well. Thank you all for being such wonderful prayer warriors for our family! God's got this, he has a plan laid out etched in stone. The Lord is our strength!
Hope PHor Aubrie Starr
3 hours ago
Aubrie has been so tired today and she hasn't done much except ride in her car that I push and get carried around every where. She was so exhausted she went to sleep for her nap around 1:00pm and didn't get up until 4:30pm. She was already back to sleep at 9:00pm. Pray for her body to get the rest it needs. With God all things are possible!
The official page for Aubrie Starr a patient diagnosed with pulmonary hypertension and branch pulmonary artery hypoplasia. Please pray for Aubrie Starr!
https://www.facebook.com/hopephoraubriestarr?fref=nf
17 July 2014
Have to leave here in the morning at 6:30am to take Aubrie to the specialty children's hospital to see her cardiologist and PH team. She had some episodes of passing out over the weekend, a couple nights of low stats and has been exhausted more than normal. Hopefully we can finally find out if anything has changed with her Pulmonary Hypertension. I will keep everyone posted!!
Hope PHor Aubrie Starr
18 July
Aubries drs feel that with her condition being so difficult to truly know what is going on all the time it is in our best interest to get a second opinion from a lung transplant specialty team. They will begin sharing notes and information with a team in Chapel Hill. It may be that she is fine where she is right now or it could mean she needs a central IV line or a sub q line. It may be that a transplant is best. Nothing has been decided they are just seeking a more experienced decision. It does appear her condition may progressing. As I am made aware of thing with her care I will let all of know as well. Thank you all for being such wonderful prayer warriors for our family! God's got this, he has a plan laid out etched in stone. The Lord is our strength!
Hope PHor Aubrie Starr
3 hours ago
Aubrie has been so tired today and she hasn't done much except ride in her car that I push and get carried around every where. She was so exhausted she went to sleep for her nap around 1:00pm and didn't get up until 4:30pm. She was already back to sleep at 9:00pm. Pray for her body to get the rest it needs. With God all things are possible!
The official page for Aubrie Starr a patient diagnosed with pulmonary hypertension and branch pulmonary artery hypoplasia. Please pray for Aubrie Starr!
https://www.facebook.com/hopephoraubriestarr?fref=nf
Pulmonary Hypertension - The Monster Claims Another
Another Facebook PHriend gone! And 2 little girls fighting for their lives. They need your prayers and they need a cure.
Patricia McFarland-Myers 28 Dec 2014
I don't mean to go all PH on you today. But we've just lost another beautiful phriend to this monster. RIP Lori Rodriguez. Lord we need a cure!
Lori Sobrowski Rodriguez - beautiful, happy, young woman passed away yesterday from PH-related heart failure. This photo is stunning in that it was taken Christmas Day, 2014.
Right - the last photo that she posted. How poignant an you get?
Breathe For Riley
Yesterday at 13:57 ·
Had to call Dr Hanna today. Always glad when he is the one that answers the pulmonary hypertension emergency cell phone for CHOP families.
Riley looked funny (extremely pale, dark nails) this morning so I put her monitor on and her oxygen level was only 65% on 4 liters. He told me to give her extra lasix and keep him posted since coming home (all fluid). She then got her dose of steroids and came up to about 80% on 5 liters.
She hasn't really left the couch since coming home. Most of her toys haven't even been taken out of boxes because she hasn't had much interest in anything but laying down.
We have tickets tomorrow for Disney on Ice, and I'm hoping we can have her stable enough to go because she is really looking forward to it.
Riley Buchanan is 6 years old and awaiting a lung transplant at Children's Hospital of Philadelphia
http://www.gofundme.com/rileysnewlungs I don't know Riley's condition. Her gofundme page has not been updated in 16 months and her facebook page has not been updated in 6 months.
Hope PHor Aubrie Starr
Sunday morning Prayers for Aubrey please.
Aubrie still has a fever, no word on her test. She still will not eat and sleeping a lot :-(
Hope PHor Aubrie Starr
Yesterday at 04:47 ·
Aubrie is back in the hospital again. Fever was up to 103.5 last night so we brought her to the ER. Aubrie has an infection in her lungs, they are testing to find out why. It could possibly be the Flu, if that comes back negative then it's on to the next test. We are also waiting on blood cultures taken last night. Fever was down last night but back up this morning.
Hope PHor Aubrie Starr
18 December at 20:10 · Edited ·
Today I received a call, Aubrie's case was denied by the specialty center at Chapel Hill. Now I will begin working with her team to find her a good out of state lung transplant specialty center.
Then we will have to send them her case and pray we find someone experienced enough to agree to guide us in her care.
We will begin trying to setup fund raisers to help pay for traveling and extended stay expenses soon. Once we are with a specialty center and she is listed for transplant it is possible we may have to completely relocate until she has her transplant and completes all recovery. Please continue to keep us in yourprayers!
Hope PHor Aubrie Starr
2 December at 20:01 ·
Update: Aubrie's breathing has been so much better!!! She is playing again and happy as ever. So glad that tomorrow on my day off I will be able to spend some time with her having fun and not at any appts or with her feeling bad, tomorrow's mommy and me time is going to be great!!
Hope PHor Aubrie Starr
7 May 2015 at 16:28 ·
Little Miss Aubrie has a low grade fever
I will monitor her through the night, if it begins to rise we will see a Dr tomorrow morning. Praying it is something simple and goes away quickly!!
Hope PHor Aubrie Starr
7 May at 20:27 ·
Aubrie's fever is still going up
She is now at 101.4 and breathes are shorter and faster. I hate to admit it but we will more than likely end up in the ER tonight.
Hope PHor Aubrie Starr
8 May at 01:39 ·
So we have been at the hospital for hours and have not had contact with anyone since we checked in, we were placed in a room immediately and had been sitting there all night. Not one nurse even came to check on her the entire time. I just went off on the nurses and told them i would have her seen somewhere else and left. Now off to another hospital.
Hope PHor Aubrie Starr
8 May at 06:27 ·
We are finally back home... Aubrie is going to be better soon!!
Hope PHor Aubrie Starr
8 May at 13:32 ·
No energy to get up. She is still in bed watching videos on her ipad.
Hope PHor Aubrie Starr
Yesterday at 13:51 · 16 May
In just 1 week we will be on our way to Ohio (from North Carolina, I believe) for an entire week of testing and meeting so many new people who will change our lives forever. This journey will be filled with so many emotions, but we are going to make the best of every moment. Each day i will post updates for everyone. Please continue to pray for our family as we embark this next path in life. Pray that nothing goes according to the itenerary but everything goes according to God's plan. I have faith in him!
I don't know how you would survive without it!
Hope PHor Aubrie Starr
Yesterday at 16:10 · Edited · 16 May
We need your help!! We would like to find as many prayer warriors as possible before we leave next week for Aubrie's lung transplant evaluation.
Please "SHARE" and "LIKE" 'HOPE PHOR AUBRIE STARR'....then comment where you are praying from, lets see how far the prayers spread!
This week, Aubrie will be going to Ohio for evaluation, testing, and perhaps planning for a transplant. The family is asking for prayer cover for this week, so I am posting this and asking for you to either go to facebook - Hope PHor Aubrie Starr and let them know you are praying and what country you are praying from, or, please let me know what country you will be praying from and I will pass it on. This will be an incredible gift for Aubrie both now and when she is older.
I expect that when the opportunity for a transplant comes that it will be very sudden and there may not be time to ask for prayer at that moment. So please keep that in mind when you pray.
Please RT, +1, repost, forward any way you can until we get thousands praying for this amazing little girl. God bless.
Patricia McFarland-Myers 28 Dec 2014
I don't mean to go all PH on you today. But we've just lost another beautiful phriend to this monster. RIP Lori Rodriguez. Lord we need a cure!
Right - the last photo that she posted. How poignant an you get?
Breathe For Riley
Yesterday at 13:57 ·
Had to call Dr Hanna today. Always glad when he is the one that answers the pulmonary hypertension emergency cell phone for CHOP families.Riley looked funny (extremely pale, dark nails) this morning so I put her monitor on and her oxygen level was only 65% on 4 liters. He told me to give her extra lasix and keep him posted since coming home (all fluid). She then got her dose of steroids and came up to about 80% on 5 liters.
She hasn't really left the couch since coming home. Most of her toys haven't even been taken out of boxes because she hasn't had much interest in anything but laying down.
We have tickets tomorrow for Disney on Ice, and I'm hoping we can have her stable enough to go because she is really looking forward to it.
Riley Buchanan is 6 years old and awaiting a lung transplant at Children's Hospital of Philadelphia
http://www.gofundme.com/rileysnewlungs I don't know Riley's condition. Her gofundme page has not been updated in 16 months and her facebook page has not been updated in 6 months.
Hope PHor Aubrie Starr
Sunday morning Prayers for Aubrey please.
Aubrie still has a fever, no word on her test. She still will not eat and sleeping a lot :-(
Hope PHor Aubrie Starr
Yesterday at 04:47 ·
Aubrie is back in the hospital again. Fever was up to 103.5 last night so we brought her to the ER. Aubrie has an infection in her lungs, they are testing to find out why. It could possibly be the Flu, if that comes back negative then it's on to the next test. We are also waiting on blood cultures taken last night. Fever was down last night but back up this morning.
Hope PHor Aubrie Starr
18 December at 20:10 · Edited ·
Today I received a call, Aubrie's case was denied by the specialty center at Chapel Hill. Now I will begin working with her team to find her a good out of state lung transplant specialty center.
Then we will have to send them her case and pray we find someone experienced enough to agree to guide us in her care.
We will begin trying to setup fund raisers to help pay for traveling and extended stay expenses soon. Once we are with a specialty center and she is listed for transplant it is possible we may have to completely relocate until she has her transplant and completes all recovery. Please continue to keep us in yourprayers!
Hope PHor Aubrie Starr
2 December at 20:01 ·
Update: Aubrie's breathing has been so much better!!! She is playing again and happy as ever. So glad that tomorrow on my day off I will be able to spend some time with her having fun and not at any appts or with her feeling bad, tomorrow's mommy and me time is going to be great!!
2 Yr Old Aubrie Starr Preparing for Lung Transplant - Please Pray
Below are a series of brief Facebook posts from Aubrie Starr's mom. Aubrie has Pulmonary Hypertension and Branch Pulmonary Artery Hypoplasia. PH, itself, is often fatal without a lung transplant, or sometimes a lung and heart transplant.
For an amazing story on pulmonary hypertension and prayer see here
7 May 2015 at 16:28 ·
Little Miss Aubrie has a low grade fever
I will monitor her through the night, if it begins to rise we will see a Dr tomorrow morning. Praying it is something simple and goes away quickly!!
Hope PHor Aubrie Starr
7 May at 20:27 ·
Aubrie's fever is still going up
She is now at 101.4 and breathes are shorter and faster. I hate to admit it but we will more than likely end up in the ER tonight.
Hope PHor Aubrie Starr
8 May at 01:39 ·
So we have been at the hospital for hours and have not had contact with anyone since we checked in, we were placed in a room immediately and had been sitting there all night. Not one nurse even came to check on her the entire time. I just went off on the nurses and told them i would have her seen somewhere else and left. Now off to another hospital.Hope PHor Aubrie Starr
8 May at 06:27 ·
We are finally back home... Aubrie is going to be better soon!!
Hope PHor Aubrie Starr
8 May at 13:32 ·
No energy to get up. She is still in bed watching videos on her ipad.
Hope PHor Aubrie Starr
Yesterday at 13:51 · 16 May
In just 1 week we will be on our way to Ohio (from North Carolina, I believe) for an entire week of testing and meeting so many new people who will change our lives forever. This journey will be filled with so many emotions, but we are going to make the best of every moment. Each day i will post updates for everyone. Please continue to pray for our family as we embark this next path in life. Pray that nothing goes according to the itenerary but everything goes according to God's plan. I have faith in him!
I don't know how you would survive without it!
Hope PHor Aubrie Starr
Yesterday at 16:10 · Edited · 16 May
We need your help!! We would like to find as many prayer warriors as possible before we leave next week for Aubrie's lung transplant evaluation.
Please "SHARE" and "LIKE" 'HOPE PHOR AUBRIE STARR'....then comment where you are praying from, lets see how far the prayers spread!
I expect that when the opportunity for a transplant comes that it will be very sudden and there may not be time to ask for prayer at that moment. So please keep that in mind when you pray.
Please RT, +1, repost, forward any way you can until we get thousands praying for this amazing little girl. God bless.
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